We felt we needed to develop our means of communication with you all and, thus, we now have the Chairman's Blog.  Due to time constraints this will not be on a daily basis!

We wish to assess the number of people with Marfan syndrome who have been refused antibiotics in relation to dental care.  As you may know, NICE have led dentists to believe that these are not necessary and the Marfan Association UK has always been under the impression that it is important that our members are advised that they are under certain circumstances  - thus the advice is printed in our Marfan literature.

The Trustees need to know the current situation.  Please share your story with us.

Thank you.